Neurologist- that one is a given, he gave us our diagnosis and continues to see Evan for follow up and regarding his sleep issues.
GI- Evan has reflux so we see the GI dr. and he is on reflux meds
Opthamologist- This is mainly for follow up and to keep a check on Evan's vision. So far it is fine.
Pulmonologist- Evan has asthma and is a risk for aspiration which can cause pnuemonia so he see the pulmonologist for these reasons.
Orthopedic- We see Dr. Hart at Shriner's to deal with Evan's spasticity and we do Botox injections and serial casting to manage this.
This is the story of Evan who was born October 22, 2004 and was diagnosed at 9 months with a rare brain malformation called bilateral perisylvan polymicrogyria which has resulted in cerebral palsy, seizures, developmental delays etc. This is the story of the joys, heartaches and frustrations of being and raising a child with special needs.
Tuesday, June 17, 2008
Entering the World of Therapy
Evan started physical therapy in August 05 and Occupational therapy in September of 2005, he saw each therapist on an alternating week basis. They both wanted to see him at least once a week but did not have enough room. We saw them at Sutter Memorial hospital, and in physical therapy Evan was working on transitioning from sitting to all fours and almost a year after starting he was sitting independently and transistioning and he began to crawl on all fours at about 14 months, it was so exciting. Evan started in October 06 with CCS and this is where he used his first walker and began to take independent steps at around age 2 1/2.
In OT he was just working on fine motor skills but his left had is so affected that this is something we are still working on.
Speech - Evan started speech at 1year old. He was with the same therapist until he was 3 years old and transistioned to the school district. He will most likely never have a functional speech and we have acquired a Dynavox communication device for him. He is slowly learning to use it. Speech at the school district started at age three and he also had speech with his feeding therapist as well.
Feeding Therapy- Evan had a modified barium swallow and was considered a moderate risk for aspiration so we started feeding therapy and discovered just how far behind he was in oral motor skills. We were lucky enough to have the school district approve feeding therapy as well so Evan has had the most awesome feeding therapist since March of 2006.
Warm Water - We also started warm water therapy in March of 2006 and we had the best therapist for most of our time there. Evan loved warm water therapy and he to this day prefers warm water for swimming instead of just regular temp water.
Music Therapy- We did music therapy for a year and evan liked it but had some issues with the early morning appt.
In the prime of Evan's therapy we had 6 different therapies every week. All of this changed when he transistioned to the school district.
In OT he was just working on fine motor skills but his left had is so affected that this is something we are still working on.
Speech - Evan started speech at 1year old. He was with the same therapist until he was 3 years old and transistioned to the school district. He will most likely never have a functional speech and we have acquired a Dynavox communication device for him. He is slowly learning to use it. Speech at the school district started at age three and he also had speech with his feeding therapist as well.
Feeding Therapy- Evan had a modified barium swallow and was considered a moderate risk for aspiration so we started feeding therapy and discovered just how far behind he was in oral motor skills. We were lucky enough to have the school district approve feeding therapy as well so Evan has had the most awesome feeding therapist since March of 2006.
Warm Water - We also started warm water therapy in March of 2006 and we had the best therapist for most of our time there. Evan loved warm water therapy and he to this day prefers warm water for swimming instead of just regular temp water.
Music Therapy- We did music therapy for a year and evan liked it but had some issues with the early morning appt.
In the prime of Evan's therapy we had 6 different therapies every week. All of this changed when he transistioned to the school district.
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