So this past friday we had an appt with the nutritionist to go over the ins and outs of the Ketogenic diet. We talked in depth with her about it and I was thinking we would go for it. But then I have been thinking further and I think I may want to wait. One factor is that Evan is starting a new school with a new teacher. Secondly, is that he seems to have not had any seizures since Thursday except for he had one yesterday. I really don't want to get my hopes up but I am starting to feel hopeful. I am so afraid that they will come back anytime.
Another reason I am thinking of starting the diet is to get him off of his 5 medications. He will be on some but maybe only 2 or 3. But then if this current combination works how can I take him off of any. That is scary.
Another thought I have is trying the ACTH and then putting him on the diet and weaning one or two meds. I just don't know.
I think I will wait to talk to the dr. more on August 14th and then go from there.
I just want the seizures stopped or reduced and the medications reduced as well.
