This is the story of Evan who was born October 22, 2004 and was diagnosed at 9 months with a rare brain malformation called bilateral perisylvan polymicrogyria which has resulted in cerebral palsy, seizures, developmental delays etc. This is the story of the joys, heartaches and frustrations of being and raising a child with special needs.
Sunday, July 29, 2012
Saturday of seizures
Yesterday I woke up & gave Evan his meds because I want to give him his meds close to the same time every day. He woke up an hour later. About an hour after that the seizures started. I called the dr because he had almost 10. I was told to give him a 10ml dose of Keppra & give it 20 mins. Evan was sleeping when I gave it to him. He woke up around 12 noon & by 2p had about 6 seizures so I gave him diastat as per dr order. It seemed to work for a few hours. They came back pretty steadily. I called the dr & he said I coul give another dose of diastat. So I gave it with all his other meds & he went to sleep. I really don't know if I should just let him have seizures or if I should push for more seizure control? He is already on 4 meds.
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