Seizures

I would like to give a quick update on Evan's seizures. We had a great run with no visible seizures. Around mid March they started picking up again. So we had an EEG, had a consult with the nutritionist to tweak the diet he is on in hopes that this would help. We also met with his neurologist. Evan was put on 30mg of Valium for about 10 days to see if that would help the seizures. It did pretty much stop the seizures and when we had the follow up EEG it was one of the best he has had. The D r. was so excited to tell me how great it was. Because it made Evan so tired we have lowered the dose to 20mg and I have leeway to lower it to 15mg if I want. It is very exciting that we were able to quickly get Evan's seizures under control because I was worried it was going to be a repeat of last year.

One thing we are doing is keeping Evan on the valium as a more long term option. It does make him a little more tired but he is able to function. He is only going to school for about 3 hrs because he is usually ready for a nap in the late morning or early afternoon. Since there is only 4 weeks of school left he isn't missing out on a lot of activities at school and a lot of his instruction time and therapies happen in the am.

So for now things are going well with seizures and we hope to keep it that way as long as possible.