Home Again

 So we finally got to go home yesterday(friday). Evan's dr came in on Thursday evening and we talked about a plan for once we got home in regards to seizures. His Dr. wants me to call if he has more than 5 in a day and if I see more than 10 I need to get his rescue med. Evan did great with seizures and then about 30 mins after the dr. left he had one and then about 7 more the rest of the night. Of course it happens that way.

Evan hanging out in the ER, not too thrilled with the O2 monitor on his finger.

 

Evan always like me or his dad to hold his hand when he is trying to sleep. I think it comforts him. And we are of course happy to do it.

Pretty out of it from the dilantin he got on Sunday night

Still pretty out of it on Monday too.

Then we head to the PICU and give him lots of Vallium and he needed a bit of O2

Still kind of out of it on Wednesday but he hadn't eaten either. Was just getting IV fluids

He was still needing a bit of O2 support so the nurse did what they call blow by. She puts the tube in a cup and then puts it near Evan's mouth and he breathes in the O2 and it helped.

You can see he is feeling better because he was using the cup as a telephone. It was so cute. He was also twirling it around.

 

So needless to say we are so glad to be home. Seizures are still very few if any at all. But we have been here before. Evan is doing well tolerating the Ketogenic diet and not getting to eat anything he wants. He still is not wanting to eat too much so that helps. He loves hard boiled eggs and he can have those so that is great. He can have hot dogs and those are one of his favorites. My hope right now is that we can keep good seizure control and not have to be back on the EEG or in the hospital anytime soon.