Common Misconception about raising a child with special needs

It is hard for me to understand how someone can think that a child who has special needs & requires extra care & attention would be a burden on a family or that parents would feel relief if the child passes on. Every child I've met that has special needs is so happy & love life. They have a special something about their personality or spirit that makes you smile & feel happy. I see it in my own son & I've seen it in friends children.
Yes, a child may need to be carried or lifted & it may hurt the back. There are solutions to that. Yes, the child may not have good vision but they "see@ more than we know. Yes, a child may not talk but they say so much. They may have a feeding tube, a trach or other tubes etc. Yes we as parents may have to fight endless battles to get what they deserve. We may cry in our rooms at night. But we get up every morning put on a happy face & get ready for whatever the day holds.
I don't think it is always easy to raise these special children, it is hard & exhausting but it is usually not the children that make it so hard it is all the fighting insurance & red tape that is hard. It is seeing your child cry because they are being put through a medical test or them not crying because they are so used to it. It is hard watching them have countless seizures or even one seizure.
It is not the feedings or suctioning or diaper changes or therapy appts.
The best part is the child. The sweet smiles, the cuddles, the amazing spirit this child still has & the fight. It is something not everyone is lucky enough to experience. Some wont ever see it. A reality that we have to face is that our children's time on earth could be shorter. Some parents know this as a certainty & some don't know if it could happen but know there is a chance. Of course there is a chance anyone could die at anytime. But some special needs children are medically fragile, they get sick easier stay sick longer & r more prone to hospital stays due to illness. Others have epilepsy & that is a risk as well.
All of our children deserve a happy & full life. A disabled child needs more care in most cases. Being Evan's mom is so awesome! He makes it so special.