First Seizure January 2008

Evan starts back to school tomorrow after being off for 4 weeks. I am so excited about this. We had a great visit with Dr. Hart at Shriner's, Evan will go on February 12th to get Botox injections in his leg and foot. Botox injections help paralyze the muscles in order to get more stretching and flexibility out of them. Very good for kids with spastic CP. One week after the injections Evan will get a walking cast on his foot and wear that for two weeks and then we will be re-evaluated and he may get another one and may not just depends how it all works out. After the botox and serial casting then Evan will be re-evaluated for a new pair of orthotics. In May we will go back to Shriner's and have botox injections in his hand and arm. I am also hoping to get a hand splint out of this as well.
On the same day as his Shriner's appt which was January 2nd, we believe that Evan had his first seizure. Now this is what is called an absence seizure so it is not the typical grand mal seizures that most people think of seizures as.
Here is what happened. Evan fell asleep on the way home from Shriner's so Rudy took him to the couch and laid with him there, they both fell asleep and Rudy woke up to Evan gagging, so Rudy sat Evan on the floor with a towel in front of him in case he vomitted. Rudy went to the bathroom and then ordered a pizza he then walked back into the living room and Evan was sitting in the same spot staring at the couch with his right hand out Rudy called his name and then picked him up, Evan was still staring and did not respond to his name or Rudy trying to turn his head to face him, this went on for about 30 seconds to one minute not to count the 5 or so minutes while Rudy was in the bathroom, Cynthia was watching Evan during this time and she said he was just staring at the couch. So the next hour Evan was basically doing three things crying, lethargic, gagging and laying on the couch or our shoulders. He did not want his milk, he did not want to eat his favorite food Pizza, nothing would console him.
I was holding him and he vomitted then we walked down the hall and I laid him in my bed and was asleep within 10 minutes, he then woke about 30 minutes later and vomitted 2 more times then was out again. And his vomit was mostly mucous and not really any stomach contents although he had not eaten well that day. So all together he slept 4 hours. He woke up at 10:30pm back to his regular self and ate some pizza and drank milk and the went to sleep around 12midnight and slept very well.
I was at the dentist with Gabe when this all started so I did not see the staring part, but I was there for the crankiness and the rest of it. I called the neuro the next day and he did not call me back. But we see him on Feb 1st. I cannot say that this was 100% a seizure but my gut and some research I did online tells me that this was an absence seizure. Even though I do not want to Evan to have another seizure, I would like to be able to get one on film to show the neurologist because I know he is going to tell me to videotape it. Double edged sword for sure in that one.