This is the story of Evan who was born October 22, 2004 and was diagnosed at 9 months with a rare brain malformation called bilateral perisylvan polymicrogyria which has resulted in cerebral palsy, seizures, developmental delays etc. This is the story of the joys, heartaches and frustrations of being and raising a child with special needs.
Monday, December 15, 2008
Update on Evan 10-07
Well, Evan had his IEP on Friday October 19, 2007 and it went a lot better than I was expecting. Of course once he starts school we will see how it goes. Anyway, he will be starting school on October 30th at a special education preschool that is a communication based program. His class will have no more than 12 kids in attendance. He will get group speech therapy and OT, as well as individualized services as well. He is going to get a adaptive PE evaluation which hopefully, they will recommend that he still gets Physical therapy as well. Another big concern is feeding therapy. I am hopeful that the speech therapist knows enough to work on that but if not then we can contract out with our past feeding therapist. Basically it is a wait and see game right now, I have to wait and see how things go at the school and with the therapists and then if it is not to my liking and Evan's benefit then I will have to do what I can do to get it changed. I will post pics of Evan's first day of school soon. I am so excited for him to start school I think he will do very well.
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