This is the story of Evan who was born October 22, 2004 and was diagnosed at 9 months with a rare brain malformation called bilateral perisylvan polymicrogyria which has resulted in cerebral palsy, seizures, developmental delays etc. This is the story of the joys, heartaches and frustrations of being and raising a child with special needs.
Monday, December 15, 2008
Official Seizure Diagnosis 2-2008
Well, we got the official word from the neurologist that the episode that Evan had earlier in the month was definitley a seizure and when I voiced my suspicions about another possible episode this past thursday the Dr. decided we should put Evan on an anti seizure medication. So we will see how things go. I am really sad, angry, frustated and scared about entering the world of seizures. For me it is so unknown and now so many new things have cropped up for me to worry about. I hate that my sweet little boy has to go through this among all the other stuff he deals with. It just seems so unfair. I feel the same way about other kids I know who have special needs and seizures along with it.
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