This is the story of Evan who was born October 22, 2004 and was diagnosed at 9 months with a rare brain malformation called bilateral perisylvan polymicrogyria which has resulted in cerebral palsy, seizures, developmental delays etc. This is the story of the joys, heartaches and frustrations of being and raising a child with special needs.
Monday, December 15, 2008
Botox Tomorrow 2-2008
Well tomorrow is the big day. Evan will get his first round of Botox in his left leg/foot. One one hand I am really excited to see how he does it would be great for him to walk on his flat foot on the left side and not be so tight. But I am nervous as this is a new thing and I do not know how he will handle it. Plus there was the big news story about Botox and some kids that have died. But Rudy and I talked about it and we feel that it is still ok to go ahead and do it. We are of course going to talk with the Dr. before hand. Evan will also be getting Botox on his left hand in May but he has to be sedated for that because it is a bit more painful and precise procedure. I think it would be really hard to keep his left hand still. Our appt starts tomorrow at 12:15 when we go to the motion lab and then we have the appt with the Dr. at 1pm. I really like the Dr. at Shriner's who is going to be doing this and I feel confident in his abilities. I of course will be taking pictures and posting those tomorrow or the next day.
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1 comment:
Before you get too involved in treatments, and at least as he gets older please look up the PERCS (Selective Percutaneous Myofascial Lengthening). Dr Roy Nuzzo.
I good friend just had this about 6 months ago (he's 11), and it has worked wonders. Do check it out.
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